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Nationwide All States All Regions Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Virgin Islands HRSA Region I HRSA Region II HRSA Region III HRSA Region IV HRSA Region V HRSA Region VI HRSA Region VII HRSA Region VIII HRSA Region IX HRSA Region X
Survey Items: Derived from: questions FACCT1 through FACCT5_a
Denominator: Children/youth ages 0-17
Numerator: Children/youth with qualifying responses on one or more of the five CSHCN screening criteria
Revisions and Changes:
Additional Notes: Survey items FACCT1 through FACCT5_a are the CSHCN Screener, a well-validated screening tool for identifying children/youth who meet the federal Maternal and Child Health Bureau's definition for having special health care needs. The CSHCN Screener asks whether a child currently experiences any of five different health consequences, and if so, whether that specific health consequence is due to a medical, behavioral, or other type of health condition that has lasted or is expected to last 12 months or longer. A child must have affirmative responses on all 3 parts (or 2 parts in the case of FACCT5 - FACCT5_a) of a screening question in order to qualify on that particular screening criteria. For more information on the development, testing, and scoring of the CSHCN Screener, email cahmi@ohsu.edu
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) were removed from the denominator when calculating prevalence estimates and weighted population counts displayed in the results tables. In nearly all cases, the number of unknown values is less than 1%; their exclusion does not impact the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). An exception to this is Household Income, which has about 10% unknown values. Please contact CAHMI (cahmi@ohsu.edu) if you have further questions.
History and Development: The Maternal and Child Health Bureau leads the development of the NSCH survey and indicators, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2001. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].