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Survey Items: C5Q012; C5Q17; C5Q09, C5Q10, C5Q05, C5Q06; C4Q05_X02 thru X02C; C4Q05_X05 thru X05C; C4Q05_X06 thru X06C; C4Q05_X07 thru X07C; and C4Q05_X08 thru X08C
Denominator: CSHCN ages 0-17
Numerator: Did not need care coordination; Did not receive 1 or more aspects of care coordination; Received effective care coordination
Revisions and Changes: These items are the same as in the 2005/06 NS-CSHCN. These measures may be compared across surveys.
Additional Notes: Care coordination is one of five subparts that make up the Medical Home summary measure. Effective care coordination part of Medical Home summary measure is derived from three separate components: 1) CSHCN's families receive some type of help with care coordination; 2) CSHCN's families are VERY SATISFIED with communication among child's doctors and other health care providers if the child visited a specialist doctor, used mental health services, received OT/PT/Speech therapy, got substance abuse treatment, or used home health care services during the past year; 3) When such interactions are needed, families are VERY SATISFIED with how child's doctors communicate with school, day care or other programs. For the display of this variable, children who did not need any aspects of care coordination were set to missing. For more information about how the care coordination measure is derived, including SAS and SPSS scoring programs, please email: cahmi@ohsu.edu
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].