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Survey Items: Survey instrument item number for children 0-5 years: D5, D6; for children 6-11 years: D5, D6; for children 12-17 years: D5, D6 Variables in public use data file: BESTFORCHILD, DECISIONS, DISCUSSOPT, RAISECONC in 2017; BESTFORCHILD, DECISIONS, DISCUSSOPT, RAISECONC in 2018
Denominator: Children age 0-17 years who needed decisions
Numerator: Children whose families usually or always feel that they are partners in decision making around issues important to their child's health when decisions were needed; Children whose families sometimes or never feel that they are partners in decision making around issues important to their child's health when decisions were needed
Revisions and Changes: In 2017, the denominator of this measure was children who had a health care visit in the past 12 months and presented in 3 categories including who did not need shared decision-making. Due to changes in the wording of the question in 2018, the prevalence estimate for children who needed decisions is not comparable with the 2017 NSCH. Therefore, the measure was displayed among children who had a health care visit and needed shared decision making.
Additional Notes: This measure is based on whether the child has a family who usually or always feels that doctors or other health care providers: 1) discuss with parents a range of options to consider for their child's health care or treatment; 2) make it easy to raise concerns or disagree with recommendations for the child's health; and 3) work together to decide health care and treatment choices would be best for the child. Children with a valid, positive response (usually or always) to at least one component and the remainder of the components were missing are categorized as families feel that they are partners in decision making. The question was asked only if child had a health care visit in the past 12 months.
Treatment of Unknown Values: Missing values may be due to non-response (i.e. a skipped item) or a “don’t know” response. The way these items are handled can vary by measure. For NPMs and NOMs, having missing values for all items in an indicator will lead to the case being given a missing value on the overall measure. For some other measures, if there is a missing value on any of the items, the case will be set to missing. How missing values are handled is documented in the "Additional notes" field above when required. Missing values are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the Interactive Data Query results table. In the majority of cases, the proportion of missing values is less than 2%. Exceptions are noted in the form of a Data Alert at the bottom of a results table. The exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Pop. Est.). To learn about the impact of the missing values on the population count estimates, click here.
History and Development: The Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB) funds and directs the National Survey of Children's Health (NSCH), and develops survey content in collaboration with the U.S. Census Bureau and a Technical Expert Panel. The Technical Expert Panel consists of experts in survey methodology and children's health, federal and state stakeholders, clinicians and researchers. The U.S. Census Bureau conducts the survey, oversees the sampling, and produces a final data set of survey results. Respondents' cognitive understanding of the survey questions was assessed during the pretest phase of the survey redesign (in 2015) and reassessed after the 2016 survey; subsequent revisions were made. Previously validated questions and scales are used when available. The manuscript "The Design and Implementation of the 2016 National Survey of Children's Health" provides detailed information about the redesign of the NSCH, administration of the first redesigned survey (2016), and the sampling and administration changes for the 2017 and 2018 NSCH. Prior to 2016, the NSCH and the National Survey of Children with Special Health Care Needs were each conducted three times as interviewer-assisted telephone surveys using random digit dial sampling. In 2016, the two surveys were combined into a single annual self-administered questionnaire. Due to decline in the number of households with landline telephones, the NSCH now utilizes an addressed based sampling method to select participating households, thus all invitations are sent by mail. Participants may choose to complete the survey either online using a secure website or a mailed paper version of the survey. All final data components are verified by the Census Bureau, HRSA/MCHB and CAHMI/DRC staff prior to public release. More information about the survey can be found in the "About the National Survey of Children's Health" section of this website and HRSA's MCHB website.
Indicator 4.14: Did this child have a family who partnered in shared decision-making for the child's optimal health?
Notes: Click on the Column Header to sort the results by ascending or descending order. To get a detailed explanation of the data HOVER over the text in the table.
Select a Response Category: Families usually or always feel that they are partners in decision making Families never or sometimes feel that they are partners in decision making
Data Source: National Survey of Children’s Health, Health Resources and Services Administration, Maternal and Child Health Bureau. https://mchb.hrsa.gov/data/national-surveys
Citation: Child and Adolescent Health Measurement Initiative. 2017-2018 National Survey of Children’s Health (NSCH) data query. Data Resource Center for Child and Adolescent Health supported by the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved [mm/dd/yy] from [www.childhealthdata.org].