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National Survey of Children with Special Health Care Needs

Nationwide Profile

Prevalence of CSHCN2001 %2005/06 %
CSHCN Prevalence
Percent of children who have special health care needs12.813.9
CSHCN Prevalence by Age
Age 0-5 years7.88.8
Age 6-11 years14.616.0
Age 12-17 years15.816.8
CSHCN Prevalence by Sex
CSHCN Prevalence by Poverty Level
0-99% FPL13.614.0
100-199% FPL13.614.0
200-399% FPL12.813.5
400% FPL or more13.614.0
CSHCN Prevalence by Hispanic Origin and Race
American Indian/Alaskan Native16.614.5
Native Hawaiian/Pacific Islander9.611.5
Multiple Races15.117.9
Spanish Language HouseholdN/A4.6
English Language HouseholdN/A13.1
National Chartbook Indicators2001 %2005/06 %
Child Health
CSHCN whose conditions affect their activities usually, always, or a great dealIndicator comparable across survey years23.224.0
CSHCN with 11 or more days of school absences due to illnessIndicator comparable across survey years15.814.3
Health Insurance Coverage
CSHCN without insurance at some point in past yearIndicator comparable across survey years11.68.8
CSHCN without insurance at time of surveyIndicator comparable across survey years5.23.5
Currently insured CSHCN whose insurance is inadequateIndicator comparable across survey years33.833.1
Access to Care
CSHCN with any unmet need for specific health care servicesIndicator comparable across survey years17.716.1
CSHCN with any unmet need for family support servicesIndicator comparable across survey years5.14.9
CSHCN needing a referral who have difficulty getting itIndicator not comparable across survey years21.921.1
CSHCN without a usual source of care when sick (or who rely on the emergency room)Indicator comparable across survey years9.35.7
CSHCN without any personal doctor or nurseIndicator not comparable across survey years11.06.5
Family Centered Care
CSHCN without family-centered careIndicator comparable across survey years33.234.4
Impact on Family
CSHCN whose families pay $1,000 or more out of pocket in medical expenses per year for the childIndicator comparable across survey years11.220.0
CSHCN whose conditions cause financial problems for the familyIndicator comparable across survey years20.918.1
CSHCN whose families spend 11 or more hours per week providing or coordinating child's health careIndicator not comparable across survey years13.59.7
CSHCN whose conditions cause family members to cut back or stop workingIndicator not comparable across survey years29.823.8
MCHB Core Outcomes2001 %2005/06 %
CSHCN whose families are partners in decision making at all levels, and who are satisfied with the services they receiveIndicator comparable across survey years57.557.4
CSHCN who receive coordinated, ongoing, comprehensive care within a medical homeIndicator not comparable across survey years52.647.1
CSHCN whose families have adequate private and/or public insurance to pay for the services they needIndicator comparable across survey years59.662.0
CSHCN who are screened early and continuously for special health care needsIndicator not comparable across survey years....63.8
CSHCN whose services are organized in ways that families can use them easilyIndicator not comparable across survey years74.389.1
Youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independenceIndicator not comparable across survey years5.841.2
Estimates based on sample sizes too small to meet standards for reliability or precision. The relative standard error is greater than or equal to 30%.
Prevalence data only available for States where this minority group makes up at least 5% of total population of children in the State.