Survey Results

Survey Items: K2Q31A/B; K2Q32A/B; K2Q33A/B; K2Q34A/B; K2Q36A/B; K2Q37A/B; K2Q38A/B; K2Q39A/B; K2Q40A/B; K2Q41A/B; K2Q42A/B; K2Q43A/B; K2Q44A/B; K2Q45A/B; K2Q46A/B; K2Q47A/B; K2Q48A/B; K2Q49A/B; K2Q50A/B; K2Q51A/B; K2Q52A/B

Denominator: CSHCN with ASD age 2-17 years

Numerator: No conditions on list; 1 condition on list; 2 conditions on list; 3 conditions on list; 4 or more conditions on list

Revisions and Changes: In 2009/10, significant changes were made to the wording of the introduction respondents heard prior to answering questions K2Q31A through K2Q52A. In 2005/06, parents were asked if “to the best of your knowledge, does [child] currently have…”. In 2009/10, the introduction was changed to “For each condition, please tell me if a doctor or other health care provider ever told you that [CHILD] had the condition, even if (he/she) does not have the condition now.” Take these changes into consideration when comparing results across survey years.

Additional Notes: After each assessment of whether the child was ever told they had a condition, a follow up item is asked to see if the child currently has the condition. The items assessing ever told are labeled "A" in the interview guide. The questions assessing whether the condition is current are labeled "B" in the interview guide. This measure of how many children currently have conditions is based on the list of 20 conditions asked about in the survey and whether or not the child's condition is CURRENT. Therefore, those who were ever told they had a condition but do not currently have that condition are not included in this measure.

Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a “Data Alert” at the bottom of a results table.

History and Development: The Maternal and Child Health Bureau leads the development of the NSCH survey and indicators, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.