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Nationwide All States All Regions Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Virgin Islands HRSA Region I HRSA Region II HRSA Region III HRSA Region IV HRSA Region V HRSA Region VI HRSA Region VII HRSA Region VIII HRSA Region IX HRSA Region X
Survey Items: Over 50 different survey questions are used to construct the 5 core outcomes counted for purposes of this indicator.
Denominator: CSHCN age 0-11 years
Numerator: CSHCN who meet between 0 and 5 of the MCHB core outcomes
Revisions and Changes: Substantial revisions were made to core outcomes 1, 4 and 5, so this composite measure is not comparable across survey years.
Additional Notes: CSHCN age 0-11 years were considered to be served by a "service system" as described in the Healthy People objective, if their care met the criteria on each of the age-relevant outcomes. Five of the six MCHB core outcomes for CSHCN apply to children birth through age 11 years. The sixth outcome, transition to adulthood, only pertains to youth ages 12 years and over. CSHCN who were missing on any outcome were set to missing in the final denominator.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
DATA ALERT: See an overview of systems of care for CSHCN and their relationship to healthy development for CSHCN over the Life Course.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].