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Survey Items: C3Q02; C3Q03
Denominator: CSHCN age 0-17 years
Numerator: Daily activities consistently affected, often a great deal; Daily activities moderately affected some of the time; Daily activities never affected
Revisions and Changes: These items are the same as in the 2001 and 2005/06 NS-CSHCN. These measures may be compared across surveys.
Additional Notes: This indicator combines the concepts of "how often" and "how much" CSHCN's conditions affect their daily activities. FOR EXAMPLE: A child may have asthma attacks only rarely, however, when such attacks occur they may greatly affect the child's abilities to do daily activities. CSHCN whose conditions "consistently, and often greatly, affect their daily activities" are those with responses of "Usually or Always" on C3Q02 AND/OR a response of "A great deal" on C3Q03. Valid responses on both items are required. If either is don't know or refused, child is set to missing.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].